Saturday, November 9, 2013

TGI the weekend...


I did pretty good Friday considering the week I've had. I took it easy though and spent a lot of time on myself. My husband and I had dinner out together when he got home, so I wanted to look and feel pretty for him. It took me the better part of the day to get myself around, because I am sore, fatigued and drained. I even got up before my alarm went off in the morning, so I even had extra time. I'm pretty sure I had descent sleep too, even dreamt, but as usual I don't remember it...hardly ever do.

I've been noticing more and more of these pricking sensations randomly all over at very random times. They almost itch. I can remember having them since I was a kid, but not as often as I have them now. More and more I realize I've had fibromyalgia since my earliest memories of childhood. I've read up on the diagnosis of Juvenile Primary Fibromyalgia Syndrome, and it sounds just like my struggles with pain growing up. I use to miss tons of school and have the same issues with sleep that I do now, along with IBS and numerous other things that I still struggle with including anxiety and depression.

Currently the tender spots on my feet, legs, back, hips, chest and arms are flared and very sore. They are like lumps and when you push on them it hurts for awhile but sometimes I can massage them away, then i'm left with just soreness, no lump. It hurts a lot to massage them, but I'm use to that sort of pain and it's almost a good hurt. I use to get deep tissue massages regularly and I tolerated intense pain during those sessions, and I know that type of pain leads to healing. I miss those appointments, but currently can't afford it anymore.

Whoever discovered and named Restless Leg Syndrome, (RLS), had no idea the extent of these menacing symptoms. It should be called Creepy Crawly Body Syndrome. The last few nights I think I've been falling asleep around 3am and up before 11am, but I'm struggling tonight, (Friday night,) with the RLS again.

....
Me with "Morning Stiffness" Stay out of my way!!
(Thank you to my favorite app for IPhone,
The Walking Dead, Dead Yourself app,
which I added the eyes
to my 2013 Halloween costume, and zombie
make-up done by yours truly.)
After a good night sleep it's now Saturday, windy and cold still, and looking like rain. I just woke up and I'm STUPID SORE! Must be that "Morning Stiffness" that the doctors talk about, that is more like The Waking DEATH!  (I have a very descriptive depiction of this to the right. hehe) Seriously though, most days I feel like a zombie. I can remember using this analogy for at least the last 25 years, maybe longer. (I don't really remember much before I was 11. hehe)


Links:

The Walking Dead, Dead Yourself App - FREE
http://www.amctv.com/shows/the-walking-dead/mobile
ITunes Linky for IPone Users: https://itunes.apple.com/us/app/walking-dead-dead-yourself/id587842308?mt=8

Go have fun and express your morning stiffness! hehe


Symptoms and Pain Levels (1 - 10 being the worst)
(some might call it TMI, but this is my LOG hehe)

  • Head, Neck and Face Pain Level 3
  • Shoulders, and upper back Pain Level 5
  • Arms, wrists, hands and fingers Pain Level 4
  • Lower back, hips, butt and mostly right leg Pain level 6
  • Knees, ankels and feet Pain Level 6.5 (mostly right side but left is not happy either)
  • frequent urination since yesterday, and urgency with difficulty emptying.
  • no appetite, except I just wanna eat sugar. :-P but I'm nauseated, and yesterday I barely ate anything, I still have all my leftovers from the restaurant in the refrigerator
  • IBS but I can go, YAY :-P
  • RLS was pretty bad last night while trying to get comfortable for "the sleep place."
  • Many tender points and lumps on my shoulders, chest, thighs, lower back/hips and feet
Helpful Links:

Juvenile Primary Fibromyalgia Syndrome

http://emedicine.medscape.com/article/1006715-overview


What Is Fibromyalgia? What Causes Fibromyalgia?

http://www.medicalnewstoday.com/articles/147083.php


Fibromyalgia Health Center

http://www.webmd.com/fibromyalgia/news-features

Brain Scans Show Fibromyalgia Patients Process Pain Differently

A Blood Test for Fibromyalgia?

Fibromyalgia Exercise, One Step at a Time

Nerve Stimulation Might Ease Fibromyalgia Pain


Researchers Find Possible Biological Basis for Fibromyalgia

http://news.yahoo.com/researchers-possible-biological-basis-fibromyalgia-204400241.html



Fibromyalgia News from Science Daily

http://www.sciencedaily.com/news/health_medicine/fibromyalgia/




New Clues to Causes to Fibromyalgia

http://health.usnews.com/health-news/news/articles/2013/08/06/new-clues-to-fibromyalgias-causes


               

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